Martha A.Q. Curley, RN, PhD, FAAN
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Family-Centered Care Scale (FCCS)

Measuring parent’s perceptions of family-centered care in pediatrics  

The Family-Centered Care Scale was developed by Martha A.Q. Curley, RN, PhD, FAAN in collaboration with Mabel Hunsberger, RN, PhD and Sion Kim Harris, PhD.

Copyright and Permission to use the Family-Centered Care Scale FCCS

Copyright for the Family-Centered Care Scale (FCCS) is held by its creator: Copyright 2013 Martha A. Q. Curley, All Rights Reserved.

You are free to reproduce and use the Family-Centered Care Scale (FCCS), without modification, for research or clinical practice. The Family-Centered Care Scale may be reproduced on forms with hospital or clinical unit letterhead or logos, or used in electronic record systems. Please cite: Curley, Martha A.Q., Hunsberger, Mabel; Harris, Sion Kim (2013). Psychometric Evaluation of the Family-Centered Care Scale for Pediatric Acute Care Nursing. Nursing Research, 62(3):160-168. Copyright Attribution should be included as follows: Copyright 2013 Martha A. Q. Curley, All Rights Reserved.

You may not remove or alter the copyright language embedded into the footer of the FCCS. The FCCS may not be used for commercial purposes or monetized without the express written permission from Dr. Martha A.Q. Curley.  If you would like to republish the tool in any form external to your organization, you will have to obtain permission from the copyright holder – Dr. Curley. Permission requests should be made in writing to Dr. Curley: [email protected].

Requests to translate the FCCS into another language should be made in writing to Dr.  Curley: [email protected]. Forward and back translations must be certified for accuracy.  Translations must include the following language: “Adapted with permission from the FCCS, Copyright 2013 Martha A. Q. Curley, all rights reserved.”
 
Any translations must be made freely available for research or clinical practice. Translations may not be used for commercial purposes or monetized without the written permission from Dr. Martha A.Q. Curley.

Abstract

Background: Caring for families is fundamental to pediatric nursing. However, existing measures do not capture parents’ experiences with family-centered nursing care.

Objective: The aim of this study was to describe the development and initial psychometric testing of the Family-Centered Care Scale, a seven-item instrument designed to measure a parent’s experience of nursing care that embodies core principles of family-centered care.

Methods: In Phase 1, 18 items describing what nurses do to engage parents of hospitalized children were derived from the literature describing mutuality. After establishing face validity, pretesting, and revision for clarity, the scale was administered to a convenience sample of 91 parents of hospitalized patients. In Phase 2, two items on parents’ perceptions of being well-cared-for were added. The 20-item scale was administered to 564 parents of children recruited from all inpatient units in a children’s hospital. In Phase 3, the scale was shortened to seven items and retested for validity among 454 additional parents.

Results: Internal consistency reliability was high across all versions and testing phases. Confirmatory factor analysis with data from a subsequent sample supported the final factor structure, regardless of patient type and race. There was a linear association between the scale consistency scores and overall quality of care ratings, supporting predictive validity of the scale.

Discussion: The Family-Centered Care Scale showed initial evidence of reliability and validity among parents with hospitalized children.

Scoring: 

FCCS scoring links the importance and consistency ratings in a single score based on the degree of “match” between parents’ importance and consistency ratings of each aspect of nursing care. 
• A “match” between parent expectations and nursing care occurs if the consistency rating for an item is the same as the importance rating for that item (e.g., scored 1 on importance & 1 on consistency etc.) or is +1 the importance score (e.g., scored 1 on importance & 2 on consistency etc.). 
• There was no match if any other combination of scores are present; for example, when the consistency rating is more than +1 the importance rating (e.g., 1 importance & 3 consistency etc.) or if the consistency score was lower than the importance score (e.g., 2 importance & 1 consistency, etc.).
• The number of “matches” are summed and divided by the total number of possible matches, then multiplied by 100, to compute a percent match score. 
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Downloadable Versions of FCCS

English
FCCS_English
File Size: 187 kb
File Type: pdf
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Danish 
FCCS_Danish
File Size: 99 kb
File Type: pdf
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Articles of Interest

Curley, Martha A. Q., Hunsberger, Mabel; Harris, Sion Kim (2013). Psychometric Evaluation of the Family-Centered Care Scale for Pediatric Acute Care Nursing. Nursing Research, May/June 2013 - Volume 62  - Issue 3 - p 160-168
fccs.pdf
File Size: 527 kb
File Type: pdf
Download File

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